John Knight:

As a father of a multiply-disabled child, I have consumed dozens of books, articles, and web sites on suffering, disability, and the sovereignty of God.

What I read yesterday morning from a young man [Joe Eaton] with spina bifida may be the best statement I have ever encountered on this subject.  Here is an excerpt:

Both pain and pleasure are meant to point us to the same reality; namely, that Jesus Christ is infinitely beautiful and so much more than enough for our every need. Living for Him, even suffering for Him, is worth every moment of affliction! Why? Because Jesus shows you such beauty in pain, because He is there and He is carrying us through.